Wednesday, April 20, 2011

Day 3 PM

Kaylie has had a day! She threw up this morning after trying to eat and drink something. We try every hour or so to offer her something to eat and drink and are very happy when we can get even a little down. Unfortunately there was a lot of phlegm that she got choked up on and threw up.

She had a pretty good afternoon, with not a whole lot going on. Had a few visitors and pretty much was in a decent mood. They only had given her one injection of pain medication for most of the day. Which is good, we don't really want a lot of pain medication is she doesn't really need it. We DO give it to her when she complains there is pain in her head.

This evening she was complaining of some pain so instead of the injection through the IV we asked for Tylenol which we would give her orally. With a lot of coaxing and help from LeAnne and I, we were able to get the Tylenol down her. (This is big deal, she only takes her medications in something to drink) However, she started gagging on the Tylenol and phlegm and threw up once again! Poor baby! So we called the nurses and we were cleaning her up when Kaylie told us she was having a seizure! So we mashed the button on her unit to let those monitoring know. She usually tells us when she feels one coming on, so this was nothing new, but with this one she didn't really act any different. The one's monitoring her got on the intercom and started talking to Kaylie and started asking her questions to she if she was responsive.

It was funny, one question that they asked her was, "Do you know where you are?" to which she responded "Right here." I had to laugh! Anyways they did not tell us if it was officially a seizure, we will find that out in the morning when we talk with the doctor. Please keep praying for her! She has been without seizure medication since Sunday and this is the first event.

Also pray for her swelling. Her right eye is now having some stuff leak from it and is in her eyelashes. The doctor is supposed to be by tonight to take a look. We hope that it is not infected!

We know the LORD is in CONTROL and are trusting HIM to watch over her!

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