Yesterday Kaylie also had the CSF drain taken out of her head. Let's just say she's one tough cookie! Now we pray that she is able to handle the extra spinal fluid on her own. We have to watch for signs of hydrocephalus for another year to make sure she doesn't need a shunt.
Today she was given "lobby privileges" so we were able to take her out of the room in a wheelchair. We went out to the lake and then through the garden to enjoy some sunshine and fresh air. It was a nice break...she's been quite moody since they started her on steroids for her fever.
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