Sorry I have not updated the blog in a few days, but the past couple of days have been difficult. We greatly appreciate all the prayers that been made on behalf of Kaylie. All the visits, texts, and phone calls have all come at the right time. There was one time when I received a text message when I was dealing with a lot and was encouraged. You will never know the power that prayer has!
I told you last that there was a lot of leaking from where they did the first surgery, and that they put a lumbar drain in her back to help prevent further leaking. Well, Sunday they checked and there was still a lot of leaking and so they decided to open up the drain in her back to start draining the spinal fluid. That seemed to work but she was not feeling good all day.
Monday was not any better. She was lethargic all day. They peformed a mapping test. A test that determines what part the electrododes on her brain control, to make sure they are not in her motor strip. Shortly after this test she began to vomit. We are not sure if maybe there was too much pressure in her head or if maybe the drain in her back was draining too quikly. Kaylie slept for about 2 1/2 - 3 hours after. The nap seemed to help, she was back to laughing and talking afterwards. She also became dehydrated from not eating and drinking and had to start an IV again to give her fluids.
Kaylie is doing much better today. Talking, singing, and playing with baby Bethany! I brought Paul and Megan today and she was happy to see them.
A verse was shared with us yesterday and I wanted to share it: Job 5:18 "For He inflicts pain, and gives relief; He wounds, and His hands also heal. So thankful that the Lord has hand in Kaylie's situation!
LeAnne's verse for the day is Psalm 73:26 "My health may fail, and my spirit may grow weak, but God remains the strength of my heart; he is mine forever."
We are trusting God to do what only He can do! Please contine to pray, we need for Kaylie to have some good seizures so we can move to surgery 2.
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