Of course as parents we were faced with a huge decision on what was to be done next if anything. LeAnne and I talked about it over and over. After this last surgery on the 24th, Kaylie has not been herself. It is truly like the lights are on but no one is home. She is calling people by their wrong name, messing up a song she knows, wasn't talking, and everything she does is in slow motion, literally!
So, what are we to do? LeAnne and I talked it over and over, who do we trust more? What is going to be the best for her long term? Decisions that any parent does not want to make.
Then yesterday afternoon Kaylie's neurologist and his team came in and talked with us. Upon looking at the MRI that was done the day before, the catheter is in the right position right now. So they agreed with the neurosurgeon that surgery was not needed. The shunt was in the exact spot they needed it to be in! We were told that the surgeon would be in later to discuss with us.
Late yesterday afternoon the neurosurgeon came in and verified that the catheter was in the correct spot, and that if he had done the surgery that is where he would have placed it. Unfortunately, when it went in too deep it went into her thalamus and caused a bruise. He explained that if you get a cut in your hand it gets better in 2 weeks, you break a bone it takes 3 months to heal, and you bruise your brain and it takes 12-18 months to heal. We were blown away! Kaylie is going to be like this for that long of a time?! The neurosurgeon told us, however, that even the small improvements she is making from this every day mean she is recovering at lightning speed.
We knew therapy was going to be a must for her physically, just not so much for her speech and cognitive abilities. We have been told the outcome by the doctors and so now we move forward. This whole thing has been mentally and physically draining on all of us, so we all went to bed rather early.
I awoke this morning with a great verse on my mind, Psalm 20:7 which says "Some trust in chariots, and some in horses: but we will remember (trust) the name of the Lord our God." We can trust what the doctor tells us or we can trust in the name of The Lord our God! Kaylie has already been talking this morning to me in 3-5 word sentences! I choose to TRUST IN THE NAME OF THE LORD OUR GOD! Our God can make the impossible POSSIBLE! May He receive the praise and glory due His name.
We know the power of who we pray to! Thank you for your prayers! Continue to pray for a speedy recovery!