Thursday, October 3, 2013

Just four more days in the hospital!

Yesterday a representative from Brooks Rehab in Jacksonville sat down with us and talked a little about their services. It looks like Kaylie will be transported there on Monday, and the plan is to be ready to go home in 3-4 weeks. When she moves to rehab I will get Paul and Megan and go home. I think all of us are ready for our own beds!

Yesterday Kaylie also had the CSF drain taken out of her head. Let's just say she's one tough cookie! Now we pray that she is able to handle the extra spinal fluid on her own. We have to watch for signs of hydrocephalus for another year to make sure she doesn't need a shunt. 

Today she was given "lobby privileges" so we were able to take her out of the room in a wheelchair. We went out to the lake and then through the garden to enjoy some sunshine and fresh air. It was a nice break...she's been quite moody since they started her on steroids for her fever. 




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