Tuesday, September 10, 2013

Day 2

We only got three hours or so of sleep last night. We woke up to the nurse cleaning Kaylie because she threw up due to her surgery. Needless to say we were running on empty today. Kaylie has pretty much slept the whole time since her surgery. She has peeked at us a few times throughout the day.

Kaylie has had activity on the brain, just not seizures. They need three typical seizures before proceeding with the next surgery, but we were told this afternoon they would like to see five.

Kaylie's wires were being worked on and she needed to use the restroom, but couldn't at the moment, so she began to cry. She did not want to go in the diaper they put on her earlier. They were able to get a bedside toilet and we helped her. She felt so much better afterwards, poor girl.

We had a surprise visit from a girl named Lauren and her mother. We were put in contact with her through Kaylie's neurologist. Lauren is a girl that had a hemespherectomy (complete right side if brain removed) in January, as is off all medicines and has been seizure free for over 200 days. LeAnne talked with her mother a few weeks ago and has contacted her through Facebook. She is a Pastor's wife and have been encouraged by their testimony of how the Lord worked in their lives. It was a huge boost for us to have them with us.

Please continue to pray for Kaylie. She is starting to swell and have been told the third day is the worse. Pray she has good seizures and that this will help them decide what kind of surgery she needs next. Thank you all for your continued love and support for our entire family.



2 comments:

  1. Paul and LeAnne,
    Thank you for the courage and commitment to share this family ordeal with all of us. I cannot even begin to say I know how you feel. Overwhelmed is an understatement for the feelings you must be enduring. All we can do is trust in our Father to hear our prayers. Please know that our prayers go out for Kaylie, you, your sweet children and all of your family. May you receive peace and calmness to make it through these long days and unbearable nights.

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  2. You guys are the strongest two people I know, and my mom is right about your courage and commitment and faith throughout this ordeal. I admire you so much for that. I can not even begin to imagine what you are going through. Know that we are all here for you and feeling your pain and praying with you and for you daily. We love you and we trust that Lord will answer all of our prayers. Give that little Angel hugs and kisses from everyone here in North Carolina, we have rallied a huge team for Kaylie!

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